HEALTH DATA ETHICS IN THE TIME OF COVID-19: A LEGAL PERSPECTIVE

Resumo

Abstract: Taking the cue from research on the bioethical and biolegal debate surrounding access to genetic data from the 1990s, this paper explores the implications of the COVID-19 pandemic from a bioethical as well as biolegal point of view. At first, by illustrating some of the risks associated with measures for the containment and contrast of the spread of the coronavirus. Subsequently, by considering the implications of such measures on people as individuals as well as workers, and by discussing the legal implications of a potential sacrifice of privacy for safety, as opposed to necessity and public interest. In this sense, the concept of genetic counseling initially proposed by Sommaggio (2010) is resumed and updated.

Keywords: COVID-19. Genetic counseling. Bioethics. Biolaw. Fundamental rights.